Mission
To improve the care and support of those affected by Myalgic Encephalomyelitis (ME) in Canada and champion the need for high quality health care, research and policy change.
Vision
Enhanced health and quality of life for those living with ME in Canada.
Strategic
Priorities
1. Create Community - Engage our ME communities and strategic partners to work together, leveraging each other's perspectives, capabilities and approaches to achieve outcomes we could not achieve alone.
2. Advocate for High Quality Clinical Care and Support - Advocate for diagnosis, treatment, and support adapted to the specific needs of our ME community.
3. Advance High Quality Research - Advocate for high quality and coordinated research to advance the understanding of ME and impact the development of new treatments and care models.
4. Promote Policy Changes - Promote and advocate for appropriate and scientifically up-to-date health policies that will contribute to positive changes for our ME community.
5. Increase Public Knowledge of ME - Improve patient, clinician, and public knowledge and understanding of ME.
Our Values
Patient-Led - “Nothing about us, without us.” Those with lived experience are key and must be leading and recognized as experts at every stage of the work.
Inclusion - A diversity of perspectives and experiences, especially those most affected by structural discrimination, are centered. We value ongoing, open dialogue, and learning on the issues impacting all our communities.
Collaboration - Working together respectfully and authentically towards our collective goals will help us to better serve our communities.
Science Driven - Safe, effective, and efficient research and clinical care for our communities is rooted in the use of current best evidence, clinical expertise, and scientific practices.
Education - Intellectual curiosity, commitment to unlearning and learning is integral to our work.
Integrity - Remain accessible, accountable and transparent to the communities we serve, our partners and to each other.
Accessibility - Information belongs to everyone it affects. We communicate in plain, accessible language without sacrificing scientific accuracy, so that no one is shut out of understanding their own health or the work being done in their name.
The ME Advocacy Project
Office
1234 Divi St. #1000,
Halifax, Nova Scotia, CA
A1A 1A1
Phone Number
(255) 352-6258